The Global Genes Project

What is the Global Genes Project (GGP)?

GGP is a global rare disease awareness and education campaign that has been developed by the rare disease community for the rare disease community.
GGP is also a platform that provides tools and resources that aid rare disease foundations in new unique ways to fundraise.

What is the goal of the Global Genes Project (GGP)?

Increase greater public awareness about the prevalence of rare disease.
Educate the community and general public about genes and the impact genes play in rare disease.
Build a unified support initiative that benefits the rare disease community as a whole.
Create a creative platform that becomes a catalyst for individual rare disease foundation fundraising efforts.

Is Global Genes Project (GGP) a 501c3 organization?

The GGP is an initiative developed by The Children’s Rare Disease Network which is a registered 501c3 organization.

Who is Children’s Rare Disease Network (CRDN)?

The CRDN is not for profit which has developed a comprehensive online community to connect, educate and empower families and caregivers affected by rare disease. www.crdnetwork.org

Can an individual use this initiative as a way to raise money for a rare disease foundation of choice?

Yes. GGP has created resources that individuals and organizations can use to help their fundraising efforts.

What % of the money raised through individual efforts will benefit GGP.

0%
At this point, 100% of all monies raised by individual foundations will go directly to their 501c3 foundation of choice.
GGP is working to find program underwriters separately that will help cover the cost of the campaign.

Can anyone fundraise?

Yes. However, if an individual wants to use GGP resources they need to be affiliated with a 501c3 organization.
GGP can not support efforts by individuals whose fundraising does not benefit a 501c3 organization.

If someone wants to write a check where should it go and who benefits?

If an individual would like to write a check based on efforts from a specific disease foundation, the individual can write a check directly to their foundation of choice.

Can an individual support the Global Genes Campaign (GGP)?

Yes. All monies raised specifically for GGP will be applied to campaign costs. Currently all campaign costs are being underwritten by CRDN.
Donations for GGP would currently be given to CRDN to cover expenses related to the GGP program development and promotion.

Can a corporation support the Global Genes Campaign (GGP)?

Yes. All monies raised specifically for GGP will be applied to campaign costs. Currently all campaign costs are being underwritten by CRDN.
Donations for GGP would currently be given to CRDN to cover expenses related to the GGP program development and promotion.

Unique – jeans come in many different styles and colors and each are unique - every person’s has genes that are unique